Has your child or patient been diagnosed with PPB or DICER1?
In addition to giving families and caregivers as much information as possible, it is critical that we continue to collect information on PPB, DICER1 and associated conditions. We ask all families and physicians who use our information to allow us to collect data on every child with PPB, DICER1 and the related conditions.
We ask for your help – please enroll with the Registry. After enrolling we will reach out with resources and information to help support you throughout your child’s or patient’s journey.